The Coalition for Collaborative Care is made up of a growing number of partner organisations. Like us, our partners want to make person-centred, collaborative care a reality by incorporating it into their lives and work. Many of them are already making direct contributions and taking action to achieve this aim.
As part of our commitment to making practical support available by providing information and networking groups for support, learning and training, we are making selected resources available here. Under each organisation you will find links to help you find out what our movement for change is doing to improve the lives of people living with long-term conditions.
Together, the Coalition for Collaborative Care and NHS England have launched a handbook focussing on new ways of working to provide the best care for people with long term conditions.
The ‘Personalised Care and Support Planning Handbook’ is designed to spark new thinking amongst health and care practitioners about the best ways to locally implement personalised care and support planning.
The handbook provides practical support for local health systems hoping to introduce and sustain care and support planning at a local level and give people with long term conditions more control over their lives.
We know that evidence shows people living with long term conditions who have the opportunity to co-design their care within the wider context of their lives, have significantly better outcomes. Yet, just 5.4% of people living with such conditions in the UK report having an agreed care plan. The handbook contains practical guidance, case studies and evidence to help health practitioners and commissioners understand how best to introduce personalised care and support planning.
The British Heart Foundation is leading the fight against coronary heart disease which is the UK’s biggest killer. Cardiac arrhythmia affects over 700,000 people in England, with atrial fibrillation absorbing almost 1 per cent of the entire NHS budget. In line with the national service framework for coronary heart disease the BHF has been piloting and evaluating Arrhythmia Care Co-ordinators (ACCs) role in 19 NHS areas in England and Wales. ACCs provide a single point of contact for patients and carers following a diagnosis of arrhythmia. They liaise with relevant professionals to ensure coordinated management of the condition, provide easy access to support and advice, and ensure optimal use of medication.
The results have been encouraging and have shown that access to advice and information is improved and having a single point of contact reduces the stress and burden of managing a long-term condition. Interviews show that patients greatly appreciated having a single, named, expert point of contact to coordinate their care.
Find out more about the BHF’s pilot here.
The Health Foundation is an independent charity working to improve the quality of health care in the UK. It believes people will enjoy better health and well-being if they have the right support and information they need at the right time, to help them make informed decisions about and better manage their own health and care. The Health Foundation has produced a video explaining what person-centred care means to one individual.
It has a resource centre featuring a range of tools and other materials that health care professionals can use to deliver person-centred care.
In addition, the charity also has an online tool which explores why person-centred care matters through a series of interviews with health professionals and people who use health services.
A recent Health Foundation report aims to inform health care professionals, commissioners and providers about what to consider when implementing shared decision making and self-management support as part of their drive to make person-centred care a reality.
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National Voices is the national coalition of health and social care charities in England. It works to strengthen the voice of patients, service users, carers, their families and the voluntary organisations that work for them.
National Voices has developed a guide to care and support planning which is part of its vision for person-centred care. You can read more about this vision here.
The Guide to Care and Support Planning can be found here.
A short film featuring TV presenter Carrie Grant on the importance of care and support planning: is available to watch here.
Nesta is an innovation charity with a mission to help people and organisations bring great ideas to life. It was behind the People Powered Health programme which involved teams from hospitals, GP practices, community organisations and patients groups across England. The programme supported these six health teams in England to test and scale collaborative approaches to supporting people with long-term conditions. This included peer support, expert patient groups, doctors prescribing exercise to group consultations and time-banking. You can find out more here.
One year on the People Powered Health programme has shown that these initiatives are continuing to improve the lives of people living with long-term conditions.
- The Lambeth Living Well Collaborative has agreed in principle, with their clinical commissioning group (CCG) and Lambeth Council, to implement an alliance contract. This will also include social care, the voluntary sector, and secondary care, and will deliver co-produced care and support for people with long-term, complex mental health and support problems.
- The CCG and GPs in Newcastle are working closely with the Voluntary Organisations Network North East to explore a social investment model for social prescribing by voluntary sector providers.
- Stockport Metropolitan Council is being supported by Nesta and the Cabinet Office, through the Centre for Social Action Innovation Fund, to scale up their co-production approach to mental health and other long-term conditions.
- Leeds is continuing with its transformation of integrated healthcare and social care across the city, with GP practices the focal point. This work includes a focus on supported self-management, putting care planning into practice, and strengthening links with community services.
MacMillan Cancer Care provides nurses and therapists that help people with cancer through treatment. They also provide experts on the end of the phone, advisers to help people understand which benefits they are entitled to, volunteers and campaigners pushing for better cancer care. MacMillan Cancer Care believes Person-centred care is care that responds to, and is guided by, an individual’s preferences, needs and values, but also that there remains a lack of guidance on how such care might be achieved.
In North East Yorkshire and Humber Clinical Alliance (NEYHCA), the charity is addressing this by using ‘Living Well: thinking and planning about the end of your life‘, a booklet developed by Lancashire County Council and Helen Sanderson Associates. ‘Living Well’ contains a number of person-centred tools to help frame conversations with patients and their families.
There are over 2.5 million people in the UK with diabetes. By 2025 it is estimated that this number will rise to over 4 million. This has major implications for the levels of care, services and support that will need to be provided in order for those people to live with and manage their diabetes. People with diabetes only have contact with a healthcare professional for a few hours per year. The rest of the time they care for and manage their diabetes themselves. It is estimated that 95 per cent of diabetes management is self-management.
Self-management means that people have to make choices and decisions about how to manage their life and their diabetes. Through good self-management, people with diabetes can improve their quality of life and reduce the risk of developing complications. In 2009 Diabetes UK produced a report looking at what it considers are the essential components that make up good supported self-management. You can read the report here.
The Royal College of Nursing has produced a resource for nurses (part of its online learning programme) to explain what they can do to make person-centred care a reality. Find out more here.